The family of a young man who died of a rare genetic disorder and required a liver transplant have appealed for more public education on organ donation. Tim Chan Tin-sung, 23, died on Wednesday in Queen Mary Hospital after a seven-week wait for a suitable liver. The Chans appealed for donors last month in a desperate bid to save him. Seven or eight people responded but some withdrew after learning of the risks. Doctors deemed that others who came forward were not healthy enough. 'We are saddened by the passing of Tim,' said his elder sister, Catherine. 'We are not blaming anyone, but if we had been able to find a matched donor sooner, the result could have been different. 'We hope there will be more public education on organ donation. Very often a transplant is a matter of life and death. It is something that cannot wait.' As the disorder is genetic, parents cannot be donors. Both Chan's sisters suffer from hepatitis B, eliminating them. A possible match emerged late last week but it was too late. 'The ordeal has made us understand more about the anxiety of families of patients awaiting a transplant,' Ms Chan said. 'If more people are willing to donate their organs, many patients can be treated. We cannot rely on the one or two nurses in a hospital tasked with asking families of deceased patients to consider donating organs.' Tim suffered from erythropoietic protoporphyria (EPP), meaning when exposed to sunlight, his body made toxins, which built up in the liver, potentially leading to its failure. The underlying cause of the disorder is also related to bone marrow, so Chan would have needed a liver and bone marrow transplant. But the hospital took him off the liver donation list because his estimated chance of survival from both operations was very low. The rare disorder becomes apparent in childhood but is often misdiagnosed. Chan was not diagnosed with EPP until 2006 after spending four months in hospital. He was last admitted to intensive care in the hospital in late March.