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A Xi’an girl’s escape from early death sheds light on China’s arduous journey to make drugs affordable for rare diseases

  • Gu Ruofei suffers from mucopolysaccharidosis (MPS), a rare metabolic disorder that stunts her growth
  • The disease, estimated to afflict one in 250,000 births, is expensive to treat, a problem made worse by its absence from a Chinese government catalogue that qualifies certain drugs for insurance reimbursement
Topic |   Health in China

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