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Explainer | Pandas – how the condition can drastically change a child’s behaviour. A Hong Kong family shares their story

  • When their son had a dramatic change in personality and behaviour, Katy and Ben Chandler sought help for nearly two years before he was diagnosed with Pandas
  • Weekly therapy sessions, drugs and supplements helped with symptoms such as OCD, chronic fatigue, ADHD and oppositional defiant disorder

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When Sam Chandler’s behaviour suddenly and drastically changed, it took two years to get a diagnosis of Pandas. From left: Sam, Ben and Katy Chandler at home in Hong Kong. Photo: Winson Wong

On a family trip to Singapore in October 2018, Katy and Ben Chandler witnessed a stunning change in their eight-year-old son Sam’s behaviour.

Katy had been watching over Sam and his younger siblings at the hotel swimming pool when he underwent a sudden transformation and became an unmanageable and defiant child.

“He was normally a well-behaved and gentle boy,” his mother recalls. Unable to control Sam, she called her husband to help.

Some time later, she would recall that Sam had also developed a facial tic – a sign of a little-known condition called paediatric autoimmune neuropsychiatric disorder associated with streptococcus, or Pandas. Sam would not be formally diagnosed with this condition for nearly two years.

The Chandler family (from left): Harry, Katy, Sam, Ben and Matilda at home in Chung Hom Kok, Hong Kong. Photo: Winson Wong
The Chandler family (from left): Harry, Katy, Sam, Ben and Matilda at home in Chung Hom Kok, Hong Kong. Photo: Winson Wong

On their return home to Hong Kong, they took Sam to see a psychologist. His behaviour improved for a short time, and they thought the therapy was working.

Sam developed a strep infection on a trip to Japan that Christmas – and his symptoms returned. He became rigid, refusing to eat certain foods – and he was highly emotional and aggressive, lashing out and throwing objects.

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