Irritable bowel syndrome social media influencers attract young people seeking help

Lauren Bell was stressed out and just starting her first post-college job in New York when she realised a bout of food poisoning wasn’t going away after weeks. A doctor’s appointment revealed she had irritable bowel syndrome, a surprising diagnosis until she learned more about the connection between mental health and gut health, as well as the prevalence of digestive problems among women. “Working in a pretty intense environment, living in the city and being an adult for the first time was doing a number on my body,” the 27-year-old said of her diagnosis five years ago. Every few months, a new TikTok or Instagram post about digestive problems goes viral – the topic often being brought up by women who suggest tips to reduce bloat or ease pain. (There are more than 1.67 million Instagram posts with the hashtag #IBS.) Experts say it is not clear whether there is an uptick in the number of people having digestive problems or if the online conversation is leading to more appointments and diagnoses. Doctors are seeing a pattern of more and younger people wanting to deal with their gastrointestinal distress, and they suspect anxiety related to increased isolation during the pandemic is playing a big role in the increase in visits. “I definitely have a lot of young women in my practice,” Chicago-based gastroenterologist Dr Nina Gupta said, “but in the past few years, I am also seeing more younger men”. Making connections and sharing tips online can help, experts say, but they also want people to be careful because what might look like advice could be more like advertising if influencers are being paid to convince people to buy a product. It is not clear what causes irritable bowel syndrome. Food sensitivities and gut microbes can play a role, and research indicates that issues with the nervous system can cause distress in the digestive process. Research indicates it can also be a two-way street: when your stomach is upset, that could affect your mental health. And mental health, especially for Gen Z and younger millennials, is a major concern. While the pandemic took its toll on people of all ages, surveys have found those age groups reported higher stress and anxiety levels than others during and after the pandemic. A 2023 report from the US Centres for Disease Control and Prevention that surveyed American high-school students during the pandemic showed teen girls’ mental health was severely impacted, with nearly a third reporting that they seriously considered attempting suicide in the previous year. Anxiety in college-age adults, especially young women, has gone “through the roof” since the early 2010s, said Jean Twenge, a Gen Z mental health expert at San Diego State University. For high-schoolers, experts say the anxiety is probably the result of two things: increased isolation during a formative time and a reliance on social media to feel connected. While changes in diet can improve IBS symptoms, Gupta said a big part of managing her patients’ conditions is for them to “recognise that there’s a connection between their stress or their mental health or their anxiety and their symptoms”. Nadya Okamoto had not pooped in four days. “I’m very bloated,” she said as she joined a Zoom interview from her home in New York. Okamoto, who has more than four million followers on TikTok, and 338,000 fans on Instagram, has built her platform around publicly addressing sensitive subjects. The 26-year-old is the founder of August, a period-product company, and frequently posts about her own menstrual cycle. Some of her most popular posts over the past three years, though, are about her experiences with irritable bowel syndrome, or IBS. Okamoto seems to share her experiences with everything – collecting faecal samples for colon cancer, constipation and bloating. “It wasn’t until I started dating and being in close relationships and talking about it with my family that I realised … it was not normal pooping three times a month,” Okamoto said. Seeing the hashtag “IBS” on TikTok led her to the doctor and a diagnosis. She has tried three different medications to treat her IBS. None worked. “From a young age, potty talk is not something that is appropriate, especially for girls,” she said. “We’re not incentivised to be open about it, which means that we know less about our bodies.” The downside of more people talking about gut health online is an uptick in misinformation. Some of the most popular TikTok posts on IBS are from people who claim they have cured it or found a home remedy that miraculously stopped some symptoms. Others recommend unproven supplements. A quick scroll of these influencers’ accounts reveals a litany of sponsorships from probiotic or other health food companies. Gupta said social media users should be sceptical when people who are not professionals start offering medical advice. Okamoto and Bell, who has a master’s in public health in nutrition, stick to talking about their own experiences. Both stressed that one of the best things about the online conversation is making information more accessible. That said, in December 2023, Bell posted a TikTok video in response to someone asking if they can self-diagnose their IBS with this advice: “I’m always going to recommend you see a medical professional.” Bell, who is black, fills a specific gap on social media. “I felt like there weren’t a lot of people who looked like me doing that type of content,” she said. “It’s not only white women who are hot girls with IBS.” Bell, who takes over-the-counter medications occasionally to treat her symptoms, started posting on Instagram about her struggle with IBS – how isolating it was and how she felt like she was having to rearrange her life and diet around her food sensitivities – and sharing her diagnosis with her friends. “It felt kind of like a secret topic that like suddenly everybody in my life had struggled with this, and once you see it, you can’t unsee it,” she said. Bell sees her role as helping women of colour figure out how to start having these uncomfortable conversations about their gut health. “Gut health spans gender, age, race and ethnicity,” she said. “We all poop.” Like what you read? Follow SCMP Lifestyle on Facebook, Twitter and Instagram. You can also sign up for our eNewsletter here.

Irritable bowel syndrome social media influencers attract young people seeking help

.css-1mniedq{color:inherit;font-weight:inherit;font-size:inherit;font-family:inherit;line-height:inherit;}IBS can cause pain, diarrhoea, constipation and bloating, and is linked to mental health. Influencers post about how to live with it

IBS can cause pain, diarrhoea, constipation and bloating, and is linked to mental health. Influencers post about how to live with it