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How rare surgery saved British baby Vanellope, born with heart outside her chest

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Naomi Findlay and Dean Wilkins look at their daughter, three-week-old Vanellope Hope Wilkins who was born with an extremely rare condition in which the heart grows outside the body. Photo: PA via AP
Associated Press

Immediately after Vanellope Hope Wilkins was born, she was put in sterile plastic to protect her heart – which was beating outside her tiny chest.

It was a moment that her parents, Dean Wilkins and Naomi Findlay, had hoped for but were not certain would actually come – a moment in which their baby girl would come into the world, and live.

The newborn, who was born November 22 at Glenfield Hospital in Leicester, England, was delivered by caesarean section several weeks premature with a rare and often fatal congenital condition called ectopia cordis, in which the heart is growing either completely or partially outside the chest cavity. Most babies born with the malformation are stillborn or they do not survive long after birth.

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“It was overwhelming, wasn’t it?” Wilkins, from Bulwell, Nottingham, recently asked Findlay about the birth of their first child, according to BBC News.
Three-week-old Vanellope Hope Wilkins at Glenfield Hospital in Leicester on Monday. Photo: AP
Three-week-old Vanellope Hope Wilkins at Glenfield Hospital in Leicester on Monday. Photo: AP

“It was very overwhelming,” she agreed.

She’s fighting it all the way and she’s defying everything, isn’t she
Dean Wilkins, father of baby Vanellope

“Especially the part where we were just staring at each other because we didn’t want to be told what was happening while it was happening. But, as soon as we heard her cry, that was it,” Wilkins said, turning toward Findlay. “We had a little cry, didn’t we?”

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