Rare disease sufferers who performed in the drama “Rare Hug” in Beijing in February to raise awareness of the plight of the estimated 20 million people in China with rare diseases. Photo: Simon Song

Rare diseases in China, their high treatment costs, and the people publicising patients’ plight

  • Twenty million people suffer from rare diseases in mainland China but of the 121 rare conditions on the government register, none entails free treatment
  • In February a foundation staged a drama performance featuring 15 patients with rare diseases to mark Rare Disease Day
Topic |   Health and wellness

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Rare disease sufferers who performed in the drama “Rare Hug” in Beijing in February to raise awareness of the plight of the estimated 20 million people in China with rare diseases. Photo: Simon Song
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